【即時更新】選擇性緘默症資源分享

協會經常收到詢問,選擇性緘默症有哪些資源呢?這真是需求大幅多於供給的領域,希望教育、醫療等各界個人和機構,能夠投入。協會希望作為資訊平台,歡迎您提供選緘相關各種資源、活動,也歡迎提案和協會合辦(請email: selectivemutismtw@gmail.com
🎬:表示影片連結
推薦書單👉https://goo.gl/x7S9g6


以下無特別註明者並非協會主辦或協辦,也不視為推薦,請自行研判是否對您有幫助,請自行聯繫主辦單位。
您可參考《選擇性緘默症資源手冊》中尋求專業協助的注意事項👉p29、p125
選擇性緘默症諮詢和協助的單位包括:各縣市社會局早療機構、各級學校輔導室和資源教室、各縣市學生輔導諮商中心、各縣市和大學特殊教育資源中心、教育部學生事務及特殊教育司、衛福部心理及口腔健康司、醫院或診所身心科或精神科,以及心理諮商所或心理治療所。

🌞以下活動正在或即將舉行🌞

用愛聽見沉默~選擇性緘默症講座雲端學習義賣>>https://sites.google.com/site/smtwlove/台灣選擇性緘默症協會主辦

2019/6/11上線/害羞?話少?自閉症?還是選擇性緘默症?—免費線上講座(附簡報和講義)>>https://youtu.be/JFhjwzKVpSA台灣選擇性緘默症協會主辦

2019/7/21/10:00/中區默默小聚/選緘小戰士Milly/沙鹿家樂福麥當勞>>http://sc.piee.pw/KMZSM

2019/7/24起八周/19:10-21:00/選擇性緘默症工作坊/林少湲、徐芸萱諮商心理師/坐忘心理治療所>>https://pse.is/J4NLR(特別提供三個公益名額給台灣選擇性緘默症協會的家長或學生


🌞過去的活動🌞👉https://goo.gl/XXpNEH

140分之一的隱形孩子~選擇性緘默症文宣



精美文宣贈送給每一位「2019公益講座~選擇性緘默症的天籟之音」參加者!
❤️7月3日14:00-16:00台南龍崗國小,劉雅真老師主講,還有選緘大孩子親身分享,你報名了沒?
※若您是台南市老師,有研習時數2小時,請另至學習護照報名(研習代號:227605)https://e-learning.tn.edu.tw/default.aspx
※承辦人:吳承蒲 電話:(06)2620024#203 Email: tnallen5@tn.edu.tw

2019公益講座~選擇性緘默症的天籟之音

希望全天下的選緘孩子,能在校園裡更無憂無慮地學習,這是我最深切的期盼!」劉雅真老師在甫出版的《不說話的女孩:雖然我們有選擇性緘默症,但是有話想說》寫道。
劉老師曾幫助三年在校從不開口的學生重拾聲音,又創立「選擇性緘默症者&家長&老師的討論區」FB社團,也是台灣選擇性緘默症協會創始人之一。
這場台南的免費講座,將由劉老師主講多年來幫助選緘孩子的實務經驗,還有選緘大孩子親身分享,以及有獎徵答活動,絕不能錯過!
名額有限,立刻報名👉
※若您是台南市老師,有研習時數2小時,請另至學習護照報名(研習代號:227605)。
※承辦人:吳承蒲 電話:(06)2620024#203 Email: tnallen5@tn.edu.tw
👉劉雅真老師「給老師的一封信」📭
劉老師演講節錄~

給老師的一封信


💓劉雅真老師即將於2019年7月3日下午2-4點在台南龍崗國小演講「選擇性緘默症的天籟之音」,絕不能錯過👉http://selectivemutismtw.blogspot.com/2019/06/2019.html


Dear○○老師好:

今天之所以鼓起勇氣寫信給您,是這樣的~

在台灣有一群孩子與家長非常需要協助,而且人數還不少!(老師,不是要您捐錢喔!怕您誤會了。😁

他們在家很活潑,會唱歌也會跟家人吵架,一旦到了學校卻因為焦慮而聲音幾乎卡在喉嚨出不來,有些孩子甚至三年在學校完全沒有說過一句話。18年前的我就是遇到這樣特別的孩子。

因為心疼他一個人獨來獨往,我以社工背景努力想了許多輔導技巧幫助他,孩子竟然在一年內走出緘默:在教室背唐詩,拿麥克風幫我叫同學的名字,這讓我深感驚訝!這孩子現在已經約30歲,出社會工作了,我們仍舊保持聯繫。

這樣特別的病名稱之為:「選擇性緘默症」。但其實,這並不是孩子們自己的選擇⋯⋯而是他們只要到某些環境會有嚴重焦慮導致無法言語,最常發生在孩子每天要去的校園。

我將輔導孩子的過程po在部落格,希望透過部落格可以幫助其他遇到選緘孩子的老師。後來在臉書社團成立了「選擇性緘默症&家長&老師的討論區」目前人數2000多人,成員除了台灣之外,也有部份來自韓國、香港、澳洲、中國的家長和選緘者,另外也有心理師、老師、輔導系學生、醫生等專業人士。

今年8月「台灣選擇性緘默症協會」終於成立了,我也參與其中。成員幾乎皆來自臉書社團。

許多家長們對於此症完全不知道所以焦慮,更多的孩子在學校被誤解,被說是啞巴。人際關係出問題之外,有些孩子甚至身體僵化無法上廁所導致尿在褲子;有些因為無法發出聲音唱歌被扣分,英語課、語文課完全無法朗讀。上課下課獨來獨往,沒有朋友又被師長誤解⋯⋯最後有些只好自學,無法自學的孩子有些中輟,當然,更嚴重的還有自傷的行為。

然而,學校老師對於此症幾乎不了解,所以無法有效幫助孩子,甚至有些錯誤思維與做法讓孩子們更陷深淵。孩子就醫時,部份醫師也完全不了解。

家長們被誤會太過寵溺導致孩子如此,孩子們被誤會對師長不禮貌,當然,被言語霸凌者也為數不少⋯⋯種種的現象只因太多老師和孩子不知道這是「選擇性緘默症」。

開學是這些孩子們與家長們最焦慮的時刻。有個孩子至今每天失眠到天亮,有的孩子一直咬著手指頭。

○○老師,我很想幫助這些家長與孩子們,這些孩子人數比我想像的多更多,我想拜託老師可否幫忙轉貼分享關於此症的訊息?讓老師們認識「選擇性緘默症」,進而幫助他們適應校園?

所以我思考了一個月,很冒昧提出拜託老師幫忙臉書貼分享的想法。老師若您不方便也沒關係呦!請原諒我的冒昧請求,非常非常感謝老師您聽完這些故事!
協會理事/教師 劉雅真 2017年12月

《不說話的女孩》贈書活動

《不說話的女孩:雖然我們有選擇性緘默症,但是有話想說》贈書活動,本周日(6/23)中午12:00截止!
台灣選緘者第一本自述書,讓隱形的一群人開始被了解,感動了很多人!善心企業提供經費,將本書捐贈給各級學校、公共圖書館、醫院圖書館等單位。邀請您共襄盛舉,填寫表單,本書將優先送達您指定的單位!
立刻填寫👉shorturl.at/fDOUV

Parents of Students with Selective Mutism Wrote a Letter to Universities, Hoping for Flexibility in Admission

By Xiaoyun Lin, Liberty Times
Taipei Taiwan, May 11, 2019

One in 140 children suffers from selective mutism. The Selective Mutism Association of Taiwan (SMAT) wrote an open letter to universities. They explained that many students with selective mutism cannot take face-to-face oral exams and that some may even be unable to take written exams in unfamiliar settings. The SMAT hopes that universities in Taiwan will become aware of this group of students and offer the flexibility needed for their participation in the admission process.

The SMAT issued the letter on the eve of Mother’s Day amidst the recent controversies surrounding the changes in the nation-wide university admission process. They hope that students with special needs including those with selective mutism are not overlooked during the policy overhaul aimed at providing more diversified access to university. For example, programs have been offered for students who are disadvantaged in standardized exams or economically challenged.

While selective mutism is not rare, it is rarely understood. People with selective mutism behave normally when relaxed but become mute and frozen or even panicking once anxiety kicks in. The typical example is a child who is talkative at home but completely mute at school. The earlier a child with selective mutism gets help, the easier it is for him to overcome this condition. However, due to a lack of awareness and resources, many of them are left untreated and develop school phobia, social anxiety or depression when they become teenagers or adults.

In 2017, a student with selective mutism, instead of going to a centralized site, was allowed at the last minute to take the entrance exam to high school at the exact same location he was used to in his original school. He was thus spared panic and scored well. This marks the first such example in Taiwan’s special education history. In the recently published We Have Selective Mutism, But We Have Something to Say, the first book written by selective mutism sufferers in Taiwan, Rochelle states that had she taken the entrance exams to university she would have failed to show any of her potential. She would not have been able to take oral exams and would have frozen and panicked during written exams. Fortunately, she entered her dream department through a special admission program based on past school records.

Anita Huang, chairperson of the SMAT, said, “Amidst the protests launched by parents regarding university admission, we mothers of special needs children have a very different focus. While others worry about whether their children do well in the exams, we worry about whether our children are able to take exams at all. The universities have been rightly increasing access for students with less resources as they often need to strive harder to achieve the same exam score. This supports universities' mission to encourage social mobility. We hope special needs students are considered in the same light to enable them to pursue their dreams.”

Anita Huang quoted from the aforementioned book, “What entering university means is that one gets an opportunity, through his own efforts, to choose how he wants to live his life. The support of the educational system means that everyone is treated equally and empowered to explore the world. Even a slight adjustment has unimaginable power. Please give an opportunity to special needs people. Their feeling of ‘I can do it’ is fire and a friendly environment is coal. When they meet, they can light up hope in the darkness of the night.”

The SMAT proposed that, according to the Selective Mutism Resource Manual, in principle selective mutism students should be allowed modes of examination that have worked in their past experience. Actual measures may differ for each student, including extended time, writing or typing instead of speaking in oral exams, voice or video recording at home (or other locations where the student is at ease) instead of oral exams, oral exams conducted by a teacher whom the student is already able to speak to, parental assistance during oral exams, and alternative sites for written exams. For example in the UK, students with selective mutism and social phobia can take exams at home or in a public location.

Photo source: Selective Mutism Information & Research Association, UK (SMiRA)
Link to the original news https://news.ltn.com.tw/news/life/breakingnews/2786923

Photo source: SMiRA